Thursday, April 5, 2012

Good Morning,
Sorry didn't get to posting this yesterday, but Tuesday and Wednesday were exhausting days.
We saw the Neuro-oncologist yesterday morning and he said that there has not been any change in the tumor since the last MRI in February, which is good news.  The problem right now is that the chemo has blown away the platelets in his blood.  The current platelet count is 14,000 and before he can get more chemo it has to be at least 100,000.  There will be another blood draw on Tuesday next week to check how the count is and we will go from there.
Dr. Green tweaked the medications a little bit to help with fatigue and a couple of other things, so we will see how that goes and give him a call back in a couple of weeks to see if more changes need to be made or just leave it alone for now.
Chris still doesn't have much of an appetite and has lost 45 pounds since the end of October.  Right now he lives on smoothies/shakes that we make for him here at home.  We dump as much protein as possible in it so he gets a pretty good serving of it.
We are still dealing with confusion and distortions of reality.  Morning time seems to be the best for him. He is fairly clear and has more energy.  He's usually zapped by 11 or 12 though so it is a very small window of opportunity for him.
We are grateful that the tumor has not grown and thank you all for your continued prayers and concern.  A special thank you to Diane for coming with us to the MRI and the appointment in L.A.  It is hard to do this stuff alone and the extra help is a blessing.
I am going to see a joint specialist tomorrow to talk about a knee replacement since the surgeon who removed my hardware and tried to clean up my knee said the only thing that will fix the problem is a replacement.
Thanks again for all the love and support.  We do appreciate it so much.  We are all doing ok at the moment and just taking things a day at a time.
With much love,
The Marsey Family