Ok, I'm falling, falling, falling behind on keeping the updates going. I realized part of the problem is that I haven't been able to get to my computer very often. lol Anyway, great day today with Patty, Ted and Greg here helping out. Ted and Jonathan put some insulation in the attic above the office and Jon's bedroom but the rest of it needs to be done after some of the ducting is moved out of the way. Jonathan did a great job according to his uncle, Ted, and if Ted says it was a good job, then it must have been!! Jim and MaryBeth came up from Poway to visit and it was good to see them. Heidi from Chris's office came to visit for a bit this afternoon also and brought something on a plate that looks like it will be good when we open it up. :-)
I know I have said this before and I will continue to say it again and again...we have such wonderful friends and family and we very much appreciate everything everyone does for us. I think Chris continues to look a bit better everyday as his body gets used to the medication he is on. He's been up all day today and is now standing over my shoulder to see what I am saying about him. Arlo and Norma got a chance to go play golf today which makes me happy. Sam and Ryan were supposed to work out getting the Christmas lights up today but since Sam is still sleeping and Ryan will be leaving for work in about an hour, it looks like no lights today. BOYS!!!
I'm thinking it might be a good idea to drive to L.A. on Wednesday night before the oncology appointment on thursday morning, so I'm going to check on hotel rooms now.
Barb, I hope you are doing ok today. I love you.
Christmas time blessings for everyone.
LOVE, CJSRJ
2 comments:
sounds like you have a great support system...lots of help and love!
Glad that Uncle Arlo and Aunt Norma were able to go golfing
today! please give them a hug from me...
would be lovely for you and Chris to be ina hotel overnight
love & PRAYERS Pam
My name is James and I am a 29 y/o Male in Houston, TX who also has Gliomatosis Cerbri. Would like to connect with you if at all possible, however have been unable to post on your blog. Do you have a CaringBridge?
Speak to you soon.
James
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