Went to radiation therapy appointment this morning. Met with Dr. Hahn who is a very nice lady. Chris likes her. Dr. Hahn confirmed the diagnosis of gliomatosis cerebri and talked about the effectiveness of the radiation therapy. She said the treatment plan would be to do therapy 5 days a week for 5-1/2 weeks. However, before starting she wants to review the case in "case conference" tomorrow in order to get input from all specialties. In addition, she said we won't start anything until after Chris sees Dr. Green, Neuro oncology in Los Angeles. Both chemo and radiation are part of the treatment plan and decided on together for the whole picture rather than separating the two types of oncologic treatment. We see Dr. Green on Thursday morning the 8th and then have a CT mapping appointment with Hahn for preparation for the radiation treatment. Dr. Hahn said Chris will have to wear a kind of mask for the rad treatment so w will see how that goes since he is so caustrophobic. Hopefully a little ativan or zanax will solve the problem and he will breeze right through.
Meanwhile, received a phone call from Dr. Butowski who provided the results of the tumor board 2nd opinion from UC San Francisco. Unfortunately he too confirmed the diagnosis of gliomatosis cerebri and said that the chemo drug that should be used for treatment is called Temodar. This is the same drug that Dr. Miller, the hem/onc doc in Fontana told me about when he came for the hematology inpatient consult. Still waiting for the opinion on the pathology from Best Doctors. Staple removal appointment has been rescheduled from tomorrow to Friday.
Well, we had the pleasure of dinner provided by Barb and Cliff Taylor. The BBQ beef was so tender and tasty on the fresh rolls. My sister will be so disappointed that she missed cheesy potatoes. The salad was really good and the cookies were delightful!! Thanks you guys for bringing the dinner. It was nice seeing Eric too. We are blessed to call you our friends.
Join me in saying goodbye to November and hello to December. Our 2011 Christmas promises are on their way. Keep us in your prayers, we will keep you in ours. CJSRJ
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