Quick update before I run (yah right - me! run??? - what a joke) to the kitchen to make some malt o meal for Chris's ever increasing appetite. As of today, the platelets are back up to 103,000 so I will go to Fontana tomorrow and pick up the chemo. Chris will start the 5 day dose again tomorrow. Stay tuned and pray that we have no complications like we did the last time!
Love to you all.
Tuesday, April 24, 2012
Friday, April 20, 2012
Friday, April 20, 2012
Things remain pretty much the same with Chris over the last couple of days. He runs a low grade fever everyday...not sure what that is all about. Still with a lot of fatigue. Waiting for next Tuesday when we will see if his platelets have risen above 100 and everything else remains unchanged.
May 1 is confirmed for my knee replacement procedure. Anticipate 3 day hospital stay and first week at home the being the most pain. Chris's sister, Patty will be here the first week and my parents will be here the following week. We could probably use some meals again for the first couple of weeks. Of course it would be up to all of you whether or not you could do that.
Get in touch closer to the actually dates and I can let you know what Chris is able to eat at that point.
Thanks everyone for your ongoing love and support. It means so very much to us.
Chris, Janet, Sam, Ryan and Jon
May 1 is confirmed for my knee replacement procedure. Anticipate 3 day hospital stay and first week at home the being the most pain. Chris's sister, Patty will be here the first week and my parents will be here the following week. We could probably use some meals again for the first couple of weeks. Of course it would be up to all of you whether or not you could do that.
Get in touch closer to the actually dates and I can let you know what Chris is able to eat at that point.
Thanks everyone for your ongoing love and support. It means so very much to us.
Chris, Janet, Sam, Ryan and Jon
Tuesday, April 17, 2012
Tuesday, April 17, 2012
Lab work done this morning and platelet count is 45,000 this week. So, coming up slowly but not at 100,000 yet so no chemo this week. All else is well.
Stay tuned....
Stay tuned....
Wednesday, April 11, 2012
Wednesday, april 11, 2012
Hope everyone had a very happy Easter. No matter what happens, we are blessed in the knowledge that our Lord came and died for us, rose again and is coming back for us.
Went to the lab yesterday for the blood draw to check the platelet level for continued chemo. As I said last week, the platelets need to be at 100,000 before the chemo can be started again. Yesterday they were at 27,000 so are slowly rising which is good. Not great, but good. However, the white blood count is going down and is below the normal range. To treat this, Chris has to have an injection of neupogen every day for 5 days. I gave him the first shot yesterday then on Tuesday we will go back to check on his blood counts again.
Meanwhile, I have a knee replacement scheduled for May 1. So, this is a plea for help while I am not able to take care of things during the early stages of recovery. Not sure yet what we will need help with, possibly taking Chris to get lab drawn or sitting around with him during the day while I'm in the hospital. The closer to the day, the more I should know of what we might need. I talked to my dad yesterday and he said that either he or mom will come down to help. Problem with that right now is that mom is having substantial shoulder pain and is trying to get to the bottom of the source of it so it can be fixed.
Please keep us in your prayers and know that we continue to have all of you in ours.
with much love,
Chris, Janet, Sam, Ryan and Jonathan
Went to the lab yesterday for the blood draw to check the platelet level for continued chemo. As I said last week, the platelets need to be at 100,000 before the chemo can be started again. Yesterday they were at 27,000 so are slowly rising which is good. Not great, but good. However, the white blood count is going down and is below the normal range. To treat this, Chris has to have an injection of neupogen every day for 5 days. I gave him the first shot yesterday then on Tuesday we will go back to check on his blood counts again.
Meanwhile, I have a knee replacement scheduled for May 1. So, this is a plea for help while I am not able to take care of things during the early stages of recovery. Not sure yet what we will need help with, possibly taking Chris to get lab drawn or sitting around with him during the day while I'm in the hospital. The closer to the day, the more I should know of what we might need. I talked to my dad yesterday and he said that either he or mom will come down to help. Problem with that right now is that mom is having substantial shoulder pain and is trying to get to the bottom of the source of it so it can be fixed.
Please keep us in your prayers and know that we continue to have all of you in ours.
with much love,
Chris, Janet, Sam, Ryan and Jonathan
Thursday, April 5, 2012
Thursday, April 5, 2012
Good Morning,
Sorry didn't get to posting this yesterday, but Tuesday and Wednesday were exhausting days.
We saw the Neuro-oncologist yesterday morning and he said that there has not been any change in the tumor since the last MRI in February, which is good news. The problem right now is that the chemo has blown away the platelets in his blood. The current platelet count is 14,000 and before he can get more chemo it has to be at least 100,000. There will be another blood draw on Tuesday next week to check how the count is and we will go from there.
Dr. Green tweaked the medications a little bit to help with fatigue and a couple of other things, so we will see how that goes and give him a call back in a couple of weeks to see if more changes need to be made or just leave it alone for now.
Chris still doesn't have much of an appetite and has lost 45 pounds since the end of October. Right now he lives on smoothies/shakes that we make for him here at home. We dump as much protein as possible in it so he gets a pretty good serving of it.
We are still dealing with confusion and distortions of reality. Morning time seems to be the best for him. He is fairly clear and has more energy. He's usually zapped by 11 or 12 though so it is a very small window of opportunity for him.
We are grateful that the tumor has not grown and thank you all for your continued prayers and concern. A special thank you to Diane for coming with us to the MRI and the appointment in L.A. It is hard to do this stuff alone and the extra help is a blessing.
I am going to see a joint specialist tomorrow to talk about a knee replacement since the surgeon who removed my hardware and tried to clean up my knee said the only thing that will fix the problem is a replacement.
Thanks again for all the love and support. We do appreciate it so much. We are all doing ok at the moment and just taking things a day at a time.
With much love,
The Marsey Family
Sorry didn't get to posting this yesterday, but Tuesday and Wednesday were exhausting days.
We saw the Neuro-oncologist yesterday morning and he said that there has not been any change in the tumor since the last MRI in February, which is good news. The problem right now is that the chemo has blown away the platelets in his blood. The current platelet count is 14,000 and before he can get more chemo it has to be at least 100,000. There will be another blood draw on Tuesday next week to check how the count is and we will go from there.
Dr. Green tweaked the medications a little bit to help with fatigue and a couple of other things, so we will see how that goes and give him a call back in a couple of weeks to see if more changes need to be made or just leave it alone for now.
Chris still doesn't have much of an appetite and has lost 45 pounds since the end of October. Right now he lives on smoothies/shakes that we make for him here at home. We dump as much protein as possible in it so he gets a pretty good serving of it.
We are still dealing with confusion and distortions of reality. Morning time seems to be the best for him. He is fairly clear and has more energy. He's usually zapped by 11 or 12 though so it is a very small window of opportunity for him.
We are grateful that the tumor has not grown and thank you all for your continued prayers and concern. A special thank you to Diane for coming with us to the MRI and the appointment in L.A. It is hard to do this stuff alone and the extra help is a blessing.
I am going to see a joint specialist tomorrow to talk about a knee replacement since the surgeon who removed my hardware and tried to clean up my knee said the only thing that will fix the problem is a replacement.
Thanks again for all the love and support. We do appreciate it so much. We are all doing ok at the moment and just taking things a day at a time.
With much love,
The Marsey Family
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